Inflammatory Bowel Disease
IBD consists of two main conditions – Ulcerative colitis and Crohn’s disease – grouped together because of their similar symptoms.
These are chronic diseases of the intestinal tract, experienced by as many as 4 million people worldwide.
The L&D has an IBD Clinical Nurse Specialist – Sister Tracey Price RGN BA (hons) Dip.N
3 further IBD nurses – Sue Nanton, Frank Castro, Linda Samuel-Tuck
And an IBD Research Nurse – Kabiru Kasamu
Gastroenterology Research is co-ordinated by Dr. Matt W. Johnson and (Dawa) Kasamu Kabiru
Presently the following research studies are active:
- BOSS – Barretts Oesophagus Surveillance
- CHOPIN – Barretts Genetics
- PROFILE – Step Up Vs Top Down Treatment Study
- BioResource – IBD Genetic Predictive Risk Factors
- iCARE – International IBD Pathway Assessment
- NIMO – Iron Deficiency in IBD
- Go Colitis – Golimumab Trial
- PANTS – AntiTNF trough and antibodies
- PRED4 – IBD Drug Side Effects
If patients are interested they can contact us on 01582 718215
- Telephone helpline and Email helpline, 01582 718368. This is a voicemail system, please leave your name, hospital number or date of birth and a contact number so that the nurses can call you back or email firstname.lastname@example.org
- We have individual web portals for IBD patients. This can give patients increased access to the IBD Team. Supported by Patients Know Best – their helpline numbers are 0800 088 5827 or 01223 790708
- We have access to the National IBD Registry. The IBD Registry is a national project to collect information about Inflamatory Bowel Disease (IBD) from across the UK for the first time.
- Patient and family support and teaching patients and carers about IBD.
- New patient counselling.
- Teaching how to self-manage IBD and organise self-management plans.
- Immunosuppressant blood monitoring for patients on thiopurine or methotrexate
- DEXA scan monitoring.
- Organising IBD patient education evenings.
- Organising the IBD patient focus group.
- Teaching about IBD to nurses, junior doctors and GPs
- Paediatric Tranition Clinic held jointly with paediatric consultants and nurses for 14-19 year olds
- Organising home care for self-injecting treatments
Symptoms of IBD
The most common symptoms of IBD include, but are not limited to:
- Abdominal pain
- Weight loss
- Rectal bleeding
- Skin and eye irritations
- Diarrhoea (not related to travel or infection)
Follow these links for our leaflets on Inflammatory Bowel Disease:
Crohns and Colitis UK
Crohn’s in Childhood Research Association (CIRCA)
Crohn’s and Colitis Foundation of America (CCFA) – the American Support group for patients with IBD
European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA)